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Obsessive-Compulsive Disorder, Compulsive Hoarding, & Trichotillomania

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Obsessive-Compulsive Disorder, Compulsive Hoarding, & Trichotillomania 5.2

The Obsessive-Compulsive Disorder (OCD) Collection v5.2 was published on 2025-05-19. OCD Distribution v5.2 includes 9406 individuals, 8251 of whom have at least one biosample on record at the biorepository. In addition to case/control studies, the OCD collection includes 5 family studies, one or more of which include families that are large and/or multigenerational.

Standard Data & Documentation

  • Distribution Bundle [ or ]: Standard files across disorders, containing demographic, diagnostic, and pedigree information. Sampled (formerly IBX) sample IDs (nrgr_bio_id) and consent level are also provided. Bundle includes data dictionaries.
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Additional Data Files

Clinical Instruments

Other

  • Phenotypic Data [ or ] Includes demographic, pedigree, and diagnostic data from a DSM checklist instrument

This study does not have any additional genetic or clinical data. All study data is included in the standard distribution files above.

This study does not have any additional genetic or clinical data. All study data is included in the standard distribution files above.

Clinical Instruments

Other

  • Study 93 [ or ] File contains pedigree relationship information and age of onset for ocd and hd.

This study does not have any additional genetic or clinical data. All study data is included in the standard distribution files above.

Clinical Instruments

Other

  • Study 119 Phenotypic Data [ or ] Includes Y-BOCS

Clinical Instruments

Other

  • Phenotypic Data [ or ] Trichotillomania data, including Trichotillomania Impact Scale, TSOCD Demographics, Best estimate final dx from SCID, KSADS & TSOCD/YBOCS & YGTSS, MGH-Hair Pulling Scale, Trichotillomania Scale for Children, Trichotillomania Diagnostic Inventory, Skin Picking Diagnostic Inventory, Milwaukee Inventory for Styles of Trichotillomania.

Clinical Instruments

Other

  • Study 138 Phenotypic Data [ or ] Includes selected DSM4 diagnosis, study specific pathological nail biting diagnosis, and selected YBOCS items.
  • Study 138 Diagnostic Data [ or ] Includes EDX

Clinical Instruments

Other

  • Study 152 Phenotypic Data [ or ] Includes Y-BOCS, HAMD

Clinical Instruments

Other

  • Study 205 Extended Diagnosis File [ or ]

MULTIPLE — Studies 16, 66

  • Phenotypic Data [ or ] Includes demographic, pedigree, and diagnostic data from a DSM checklist instrument

Study 93 — Identifying Intermediate Phenotypes for Compulsive Hoarding

  • Study 93 [ or ] File contains pedigree relationship information and age of onset for ocd and hd.

Study 119 — Attaining and Maintaining Wellness in OCD

  • Study 119 Phenotypic Data [ or ] Includes Y-BOCS

Study 134 — Genetic Study of Trichotillomania

  • Phenotypic Data [ or ] Trichotillomania data, including Trichotillomania Impact Scale, TSOCD Demographics, Best estimate final dx from SCID, KSADS & TSOCD/YBOCS & YGTSS, MGH-Hair Pulling Scale, Trichotillomania Scale for Children, Trichotillomania Diagnostic Inventory, Skin Picking Diagnostic Inventory, Milwaukee Inventory for Styles of Trichotillomania.

Study 138 — Identification of rare variants of OCD

  • Study 138 Phenotypic Data [ or ] Includes selected DSM4 diagnosis, study specific pathological nail biting diagnosis, and selected YBOCS items.
  • Study 138 Diagnostic Data [ or ] Includes EDX

Study 152 — Control and Reward Circuits as Targets for Repetitive Thoughts and Behaviors

  • Study 152 Phenotypic Data [ or ] Includes Y-BOCS, HAMD

Study 205 — Hoarding Disorder in Older Adults: Cognition, Etiology And Functional Impact

  • Study 205 Extended Diagnosis File [ or ]